Online forums
ONLINE FORUMS
MPN Net
Contact: MPN Education Foundation
- Email: Joann.Mannino@gmail.com
- Listserv: https://mpninfo.org/support/mpn-net-online-support-group/
- Focus: All MPNs
The Leukemia & Lymphoma's Society Community
Contact: Leukemia & Lymphoma Society
- Email: community@lls.org
- Online forum: https://communityview.lls.org/s/
- Focus: All blood cancers
The Leukemia and Lymphoma Society-Living with Myeloproliferative Neoplasms (MPN) Chats
Contact: Leukemia & Lymphoma Society
- Email: https://lls.org/form/contact-us
- Registration: https://cloud.e.lls.org/chatregistration
- Focus: All blood cancers
MPN Voice Forums- UK
Contact: MPN Voice UK
- Email: info@mpnvoice.org.uk
- Website: https://www.mpnvoice.org.uk/get-involved/patients-forums/
- Focus: All MPNs
Blood Cancer UK Online Community Forum
Contact: Blood Cancer UK
- Website: https://forum.bloodcancer.org.uk/t/recently-diagnosed-mpn/10069
- Focus: All MPNs in the UK
MPN Mates
Contact: MPN Mates
- Email: info@mpn-mate.com
- Website: https://www.mpn-mate.com/forum/viewforum.php?f=3
- Focus: All MPNs in Australia
If you would like to add an online forum to this page that you run or are a member of, please send an email to communications@mpnrf.org.
There are many online forums and groups organized around MPNs. These are easy ways to get introduced to people with PV, ET, and MF. Caregivers also participate in online forums, and they are excellent formats in which to share information.
